the solution
We have established the first national population-based surveillance system of individuals with eating disorders using a data linkage approach to bring together information from multiple data sources. It will be based on administrative health data that span the various access points to the health system in the screening, diagnosis and treatment of individuals with eating disorders.
the problem
Health system data can tell us who is seeking and receiving treatment, what kind of treatment they are receiving and the outcomes. Just as importantly, it can reveal those who never engage with treatment and/or those who are falling through the gaps. However, this data is currently isolated in different parts of our health system.
our aims
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To create a national profile of eating disorder instances across demographical groups, geographical areas and over time.
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To create a national profile of interactions with the health care system, interventions, and outcomes.
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To assess current detection and early identification tools in various models of care, including new innovative digital platforms.
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To track impact of interventions on immediate and long-term health outcomes to inform policy and practice.
“Our vision for the research is about establishing good clinical links and collaborations where we can identify clinical relevant research questions facilitating population health research that has a translational impact”.
Professor Natasha Nassar, Chair of Translational Childhood Medicine, University of Sydney
To consolidate and connect data from across the health care system to understand people with lived experience of eating disorder's interactions with established and emerging treatments and interventions.